10 Years of The CEDD at the UC Davis MIND Institute
Articles,  Blog

10 Years of The CEDD at the UC Davis MIND Institute

yeah Hello, I’m Robin Hanson, director of the
center for excellence in developmental disabilities at the UC Davis MIND
Institute. The CEDD at the MIND Institute is part of a national network of
University centers of excellence for developmental disabilities and is one of
three in California. The UCEDDs formerly known as university-affiliated
programs were authorized as part of the developmental disabilities assistance
and Bill of Rights. We are funded by the Administration on Intellectual and
Developmental Disabilities and we all share responsibility and passion for
work with persons with disabilities, their families, providers, as well as
advocates, community, and government agencies to provide training and conduct
research that results in community inclusion and positive and meaningful
changes for persons with developmental and intellectual disabilities. In
addition we work in collaboration with our state partners which include the
UCEDD at UCLA Tarjan Center, UCEDD at USC Children’s Hospital, LA, the
State Protection and Advocacy in California known as Disability Rights
California as well as the State Council on Developmental Disabilities. In summary
the UCEDDs work to create a shared vision across the state and nation in which all
people with developmental Disabilities participate fully in the social,
educational, and economic lives of their communities. The CEDD at the MIND Institute was
founded in 2006 and this year we’re celebrating our ten-year anniversary our
Center enhances much of the groundbreaking work already taking place
at the UC Davis mind institute by providing increasing links to the
community and to the national network our CEDD has developed many resources
provided hundreds of hours of training and technical assistance help to
influence state and federal policy and conducted important translational
research in collaboration with researchers from the mine institute and
UC Davis here’s a bit more about some of our projects, programs, and
accomplishments in our first 10 years. Each August the CEDD partners with the
UC Davis Office of Continuing Medical Education to bring you the Summer
Institute on Neurodevelopmental Disorders. This conference not only
provides updates from researchers at the MIND Institute, UC Davis, and other
university centers but provides allied health professionals, family members, and
educators with the most current information about policy and
evidence-based practices in neurodevelopmental disabilities. Over the
past 10 years, thousands have attended this conference here in the Northern
California area but many thousands more have benefited from it by accessing the
recorded presentations through UCTV and the MIND Institute websites. This year’s
conference will feature a keynote address given by the Executive Director
of the Association of University Centers on Disabilities, Andy Imparato, providing
us with a disability policy update from the national perspective. In addition to
the Summer Institute the CEDD and the MIND host monthly lectures for the community
including the Distinguished Lecture Series and Minds Behind the MIND. These lectures feature world leaders in
developmental disabilities research and practice and are free and open to the
community to attend either in person or through YouTube and the MIND Institute
website in order to meet the increasing needs of educators and allied health
professionals to learn about Autism Spectrum Disorders the CEDD is partnered
with UC Davis extension to provide a special student program in Autism
Spectrum Disorders. This three-course series is offered online and has reached
providers across the nation as well as internationally. We’ve recently developed
the free introductory course called Autism Across the Lifespan which can be
accessed through the Coursera online learning platform and of course there’s
also a great need for parents to learn strategies to address the needs of their
children with Autism. The Autism Distance Education parent training program for
ADEPT is a free online program for parents that is offered in both English
and Spanish. This program can be accessed from our website from anywhere with
internet access. The CEDD has worked very hard to bring to scale some of the
applied research that is taking place nationally. One example is development of the
California Autism Professional Training and Information Network, or CAPTAIN. This
statewide network was established by our CEDD in collaboration with California
Department of Education the Department of Developmental Services and the UCEDD
at USC Children’s Hospital to scale up the research at the National
Professional Development Center for Autism Spectrum Disorders. At this point CAPTAIN has over 400
members, with every county in California represented by at least one trainer of
trainers of this model. Our ongoing efforts to support underserved
communities and as part of our mission to support model inclusion practices the
CEDD has provided technical assistance for the triumph preschool in the Oak
Park community of Sacramento. This inclusive preschool provides a beacon
for the community and illustrates the impacts of high-quality inclusive
practices for children with and without disabilities. California Early Start
Network is coordinated by the CEDD, and involves 25 county interagency teams in
collaborative bimonthly teleconference. This conference provides a forum for
discussion of policy, resource sharing and development, and active
interdisciplinary problem solving for providers involved in provision of early
intervention services for children from birth to five. Transition from school to
adult life has become an increasing need as the numbers of youth with autism and
other intellectual and developmental disabilities move from the public school
system out into community services. In order to support these youth, their
families, and to build a high quality system of inclusive supports our CEDD has
established the think transition work group. This group of stakeholders is
regularly at the MIND Institute to identify key issues and develop
community-based solutions to these challenges. One example is the need to assist
families in understanding the transition process and how to access adult services.
In order to address this challenge the think transition group sponsored and
organized a training series here at the MIND Institute during the 2014-15 school
year. Topics in this training series included transition assessments and the
IEP process, information about supported employment and supported living services,
as well as information about medical care transition from pediatric to adult
medicine. As with all of our community lectures and trainings these sessions
are free to the public and are now accessible through the CEDD website. The
business advisory council recently began to address the challenge of finding
integrated competitive employment for adults with intellectual and
developmental disabilities in and around the Sacramento area. The Planning Group
for the business advisory council consists of local supported employment
providers, the Department of Rehabilitation, the Sacramento employment
training agency, the State Council on developmental disabilities, and community
members who have worked to identify and promote best practices for job
development, to share resources, and identify opportunities and barriers for people
with intellectual and developmental disabilities to fully contribute in the
workforce. One important aspect of community inclusion for many with
intellectual and developmental disabilities involves the use of
assistive technology. To help promote the use and
understanding of assistive technology and augmentative communication systems
are CEDD coordinates the AT consortium. Various stakeholders from public
education department of rehabilitation, developmental disability services, and the
community participate in this consortium. Efforts to raise awareness of assistive
technology in the community have included print material, resource fairs
which feature AT users discussing how AT and AAC has enhanced their lives and
access to community, as well as regular demonstrations of various AT and AAC
systems through our resource center. Speaking of our resource center if
you’re ever in the area please do stop by. We’re located just inside the entrance
to the MIND Institute at 2825 50th Street in Sacramento. The CEDD is
partnered with the Warm Line Parent Training and Information Center to run
the resource center for community, students, faculty, and staff of UC Davis.
The center is staffed by knowledgeable practitioners who can answer technical
questions will provide resources and referrals as needed. The resource center
is also staffed by family members from the Warm Line we can provide invaluable
parent to parent support and family perspectives related to some of the most
pressing questions community members have about autism,
intellectual, and other developmental disabilities. The resource center provides a warm and
inviting place to come explore resources, or participate and support groups such
as Vamos a Platicar, support group for spanish-speaking families. Our center has
made great efforts and strides in bringing information and resources to
the many Latino Californians are affected by intellectual and
developmental disabilities. Vamos a Platicar and the spanish-language ADEPT
program are just a couple of our examples. CEDD staff have also partnered
with the mexican consulate here in Sacramento to provide regular
developmental screenings, resources, and referrals. We also hold many community lectures
each year in Spanish and have spanish- speaking staff available to support
families and the resource center. The MIND Institute is an international
leader in research related to Autism Spectrum Disorders and other
neurodevelopmental disabilities. Our CEDD is an ongoing partner in this research,
including several translational and community partners. Research studies that
are making an impact such as finding successful interventions for the social
inclusion of adults with ASD, improving the early identification of children in
underserved communities, and improving access to high-quality early
intervention services. Our goal is to support ongoing efforts
for effective community based treatments inclusive supports and services to those
with autism and intellectual and developmental disabilities, and their
families to improve their quality of life, maximize their independence,
productivity, and community inclusion. Thanks to the ongoing support of our
community, partners here at the University, and across the state we have made a significant impact during
our first 10 years. We look forward to what the future holds
and we are committed to continuing to work with everyone in our community. I believe the having a CEDD of the mind
institute has really opened up the doors to allow historically marginalized
communities to have a place to come to get credible information to ultimately
support the child. Having the CEDD in my community has brought a statewide grant
that help us implement evidence-based practices such as peer mediated
instruction. I got to be here having CEDD at the MIND Institute has
allowed us to reach thousands of educators in California and nationwide
through the autism special studies program. Having the CEDD our community has
been great because we have a Summer Institute to bring professionals and
families together to learn about developmental disabilities. Having the CEDD
at the MIND Institute has provided som amazing resources to the community
like the great videos on the website. Having the CEDD at the mine has helped
the spanish-speaking families to have access to more resources. Having the CEDD here at the Mind Institute has really improved my opportunities as a
trainee to learn about the community and the services we provide. And I would echo
that. Having the CEDD has provided so many opportunities for our trainee and
fellowship and to meet people in the community and learn about all kinds of
developmental disabilities and what services we can help with. Having the CEDD at the MIND Institute
has made it possible for me to do my research in Sacramento and the whole
state of California. Being here at the CEDD gave me an opportunity to become a CEDD
intern that provided me to become a paid CEDD staff.

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